Mission Statement

This website documents one man's quest to cure his MS through determination, perseverance and a little luck.

Although harsh drugs and strict diet were successfully supressing my devestating MS relapses, disease progression was quickly deteriorating my ability to walk and slowly deteriorating my ability to think. The logical solution for me was to try HSCT, which is not FDA approved, so I left the country to do it. This website documents my research and journey to effect a cure.

Time Since Transplant

35.3 Months

clock

Below is a list of the MS symptoms and disabilities that I've had to deal with during the course of my affliction. There's also an accounting of any resolution if any. This accounting will be updated as symptoms change. My first MS attack was in April 2013. My HSCT Day Zero was on June 5th, 2016. On July 1st, 2016, I made a significant increase in my pain medication. Improvements notated in this chart are ongoing.

My MS to HSCT disease timeline

April 2013 - first symptoms of MS
Nov 2014 - MS diagnosis
Feb 2015 - began Rebif DMT
Mar 2015 - aborted Rebif due to relapse
Apr 2015 - began Tysabri DMT
Feb 2016 - aborted Tysabri to washout for HSCT
May 2016 - began HSCT
June 2016 - completed HSCT (June 5, 2016 "Day Zero")
Dec 2016 - HSCT six-month recovery milestone
March 2017 - HSCT 9 month recovery milestone. Maxed-out tegretol dose, more pain returns.

Symptom List

  • Inability to balance, dizziness
    Frequent symptom. First experience April 2013, continual worsening through date of HSCT. Partial recovery by Dec 2016.

  • Inadequate thermoregulation, heat sensitivity
    Frequent symptom. First experience January 2015. Temporary blindness getting out of a hot shower. Mostly resolved by January 2016, likely through change of diet. Fully resolved by Dec 2016.

  • Sharp pain across shoulders
    Frequent symptom. First experience April 2013. No resolution. Mitigated with medication.

  • Sharp pain in left shoulder, deltoid & triceps, nerve hypersensitivity under facia
    Frequent symptom. First experience May 2013. No resolution. Mitigated with medication.

  • Dead pain down left arm and into wrist
    Infrequent symptom. First experience Summer 2015. 75% Resolution shortly after HSCT.

  • Dead pain in right forearm
    Very infrequent symptom. First experience Summer 2015. 75% Resolution shortly after HSCT.

  • Regular numbness in both arms while sleeping
    Nighly symptom. First experience sometime in 2014. Resolution shortly after HSCT.

  • Left hip numbness, pins & needles, spasticity
    Very frequent symptom. First experience mid-2013. Partial resolution by summer 2016 after increase in pain medication.

  • Left hip lateral weakness
    Persistent symptom. First noticed early 2015. Problem at worst by summer 2016, just after HSCT. Partial recovery as of Dec 2016.

  • Left knee control/weakness
    Persistent symptom. First noticed March 2013. Problem at worst by summer 2016, just after HSCT. Partial recovery as of Dec 2016. Walking is a little better if I work hard.

  • Left foot weakness
    Persistent symptom. First noticed March 2013. Partial recovery of strength as of Dec 2016.

  • Left leg atrophy
    Persistent symptom. First noticed December 2015. No notice of recovery yet.

  • Left leg foot drop
    Persistent symptom. First noticed July 2014. No notice of recovery yet.

  • Left arm and hand weakness
    Persistent symptom. First noticed Summer 2015. No notice of recovery yet.

  • Right upper leg, lower leg, foot burning pain
    Frequent symptom. First noticed June 2013. Significant resolution likely due to medication. Lower leg & foot burning returned March 2016; reason unknown.

  • Right big toe numbness
    Infrequent symptom. First noticed Winter 2015. Full resolution shortly after HSCT.

  • Brain fog
    Frequent symptom. First noticed Winter 2014. 75% resolution by Winter 2015, likely due to diet change or Tysabri.

  • Fatigue
    Frequent symptom. First noticed Summer 2014. 50% resolution by Winter 2015, likely due to diet change.

  • Inability to find simple words
    Frequent symptom. First noticed early 2015. 25% resolution by Winter 2015, likely due to diet change.

  • Lhermitte's Sign
    Frequent symptom. First noticed March 2013. Mostly resolved shortly after HSCT, likely due to procedure & medication.

  • Ringing in ears
    Frequent symptom. Unresolved.

  • Tremor/Spasticity
    Semi-frequent symptom. Unresolved.

  • Slurred speech
    Infrequent symptom. First noticed Summer 2015. Mostly resolved; reason unknown, possibly Tysabri.

  • Eye pain
    Frequent symptom. First noticed Summer 2014. Mostly resolved by Summer 2015, likely as a result of diet change or Tysabri.

  • Double-vision, inability to focus
    Frequent symptom. First noticed Summer 2014. Mostly resolved by Summer 2015, likely as a result of diet change or Tysabri.

  • Puritis
    Infrequent symptom, usually at bedtime. First noticed Summer 2014. Somewhat resolved by Winter 2016.

  • Depression
    Frequent symptom. First noticed Fall 2014. Depression level seems to be directly proportional to sustained pain levels. Mostly resolved shortly after HSCT, likely due to an increase in pain medication and pain relief.