Mission Statement

This website documents one man's quest to cure his MS through determination, perseverance and a little luck.

Although harsh drugs and strict diet were successfully supressing my devestating MS relapses, disease progression was quickly deteriorating my ability to walk and slowly deteriorating my ability to think. The logical solution for me was to try HSCT, which is not FDA approved, so I left the country to do it. This website documents my research and journey to effect a cure.

Time Since Transplant



1136 Days

clock

It's been a while since my last report. Oh, how life keeps us busy when we actually start to get our life back!

So let me just start by saying that I saw my MS neurologist last week for the first time in a full year. He performed a full EDSS evaluation on me. Then he went to jot the results down in his notes. Then he looked puzzled for a moment before he came back to re-measure my left leg (hip, knee, and ankle strength). "Wow," he said. "You're stronger." 

Well, that almost brought a tear to my eye, even though I knew I was stronger. It's just that the last time he made a comment about my left leg was right before I decided that I needed to do something drastic. He said, "well, your left leg is definitely getting weaker." That's what brought me here to HSCT.

As if that wasn't enough of a gold star, he continued. He read off the medication list that the nurse had jotted down. "That's all? No MS medications?" I said no. "That's all," he repeated. "What about Rituxan? Are you still on that?" I told him my last tiny dose was six months ago. "And for pain?" he asked. "These numbers are correct?"

"Looks like it worked," he said.

I was shocked. Of course, those were the exact words I had hoped to someday hear him say, but I guess I never actually thought I would hear them. Dr. West is not a doom & gloom doctor, but it just seemed to be so impossible, considering the ongoing trauma I had suffered for so many years, always seeming to get worse, no matter what any doctor did. I just sat there emotionless because I was truly dumbfounded.

Then he hit me with my updated EDSS: 2.0. Again, I was shocked. But this time, I just started grinning, ear-to-ear. This was an apples-to-apples comparison. The same doctor, sitting in the same chair, scored me a 3.5 about two years ago. And back then, he said I was getting worse.

HSCT improvement so far: 1.5 EDSS points!

This isn't the end of this book, however. I still have about seven more months left in my HSCT recovery. That means that I will probably continue to heal and improve for a while longer. That's great because I still stumble a lot and walk with a pretty severe limp. And while the pain is so much better than it was just a few months ago, there's a lot more it can improve. If it continues to subside, I can continue to drop that nasty medication. After seven months, then I'll get my final vaccinations, and the procedure will be complete.

Right now I'm in a pretty good place. I seem to notice weekly improvements in my condition. I can wiggle my left toes again. You don't know how nice that is until you can't do it. I can engage in long conversations with friends without major pain flare-ups. I can drive more than 10-15 minutes at a time. I can sleep through the night. The world is becoming my oyster again!