Mission Statement

This website documents one man's quest to cure his MS through determination, perseverance and a little luck.

Although harsh drugs and strict diet were successfully supressing my devestating MS relapses, disease progression was quickly deteriorating my ability to walk and slowly deteriorating my ability to think. The logical solution for me was to try HSCT, which is not FDA approved, so I left the country to do it. This website documents my research and journey to effect a cure.

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I haven't had my bloodwork done in over a year now. After the HSCT and the six extra bi-monthly doses of rituximaub, my white blood cell (WBC) count never got over 3,800/ml. Low normal for me is considered to be 4,000 - 11,000. I was told that this was not dangerous because my neutrophil count was normal, and they are the body's first line of defense against infection. They also told me that some people who do HSCT never return to 4,000+, so 3,800 might be my new normal.

Well, surprise. A recent blood panel now shows my WBC to be 4,000. It just goes to show that it can take a few years for a body to return to normal. Still, it does continue to heal after HSCT, hopefully indefinitely. There's no doubt that I'm better in many ways than I was a year ago. And a year ago, I was better than I was a year before that. How many people with MS can say that they are slowly getting better?

As far as the pain goes, I don't think the Lyrica CR is helping much anymore. I decided to try something new. I am hypothesizing that part of my shoulder/arm pain is due to tightening muscles from a vicious cycle of nerve/muscle interaction. I tried adding baclofen to my medication cocktail, but I couldn't tolerate everything together. I cut my Lyrica CR dose by a quarter (82.5 mg), and now I can tolerate the addition of 10 mg baclofen. I'm even more fatigued now, but I do think there's better relief. I'll maintain this change for a month, then I'll try to drop another 82.5 mg Lyrica CR and replace that with another 5 mg baclofen.

I should mention that UCSF Pain Management Center performed two diagnostic nerve root blocks on my cervical medial branch nerves. The hypothesis was that these nerves were being irritated, triggering pain. The first diagnostic was positive, but the second was negative. So this whole line of reasoning was a bust. Too bad. It was expensive and painful. But even if a diagnostic test like that fails, you still learn something. Those nerves aren't the cause.