Portal to the heart (Day -5)

Minor Surgery Day
Yesterday, everyone in Group 1 went to the hospital for a short outpatient procedure: the placement of a hemodialysis catheter. This device is a pair of tubes inserted just under the clavicle, each about the size of a large vein. Together, they allow blood to flow out of the body, through the apheresis machine, and back in again — a key step for the treatment process.
No, this is not a Jamaican hospital ;)The Hospital Experience
And no, this was not a “third world hospital.” Quite the opposite — the facility was modern, clean, and professional. The waiting room bathroom was huge, with a marble shower. Staff were consistently courteous, and housekeeping even checked in during my short stay, asking for initials on their rounds sheet to confirm the cleaning.
Having been through several surgeries before, I wasn’t nervous. The anesthesiologist kept everything completely pain-free, and the procedure itself took just 15 minutes under general anesthesia. No complications, no issues.
Afterward, I rewarded myself with corn-flour quesadillas — my first cheese in almost a year.
Life Outside the Hospital
When we returned to our apartment, we requested a move to a quieter unit. Our first place was across from a disco club blasting music until 5:30 a.m. twice in a week, followed by a jackhammer at 7:30 a.m. — not ideal for recovery.
The hospitality company was very accommodating. They helped us move during a thunderstorm, even providing a shopping cart and guiding us through the basement garage to stay dry. The new unit is spotless (we may be the first to stay here), though it’s missing small things like toilet roll holders and a reverse-osmosis water system. Felipe kindly brought us a 10-liter bottle of drinking water. Last night was blissfully quiet.
Recovery
Later in the evening, I felt some expected soreness from the surgery, but nothing more than what could be handled with Tylenol (Tylex here). This morning I was up at 7 a.m. for my filgrastim injection (a stem cell mobilizer), took another Tylenol, and managed two more hours of solid sleep. By mid-morning, I was pain-free again.
All in all, not bad at all — especially since this was the only surgical procedure in the protocol.
Extras
I’ve also gone back and added photos to some earlier posts for anyone following along.
Important Timeframes
- My Stem Cell Transplant Date: June 5th, 2016
- Treatment duration: 4 weeks
- Typical onset of disability reversal: +9 months
- Typical complete recovery from procedure: +1 to +2 years
- Typical maximum reversal of disability: +2 years
Disclaimer
I am not a doctor. I am a scientist (engineer) who has had MS since March 2013.
The website blogs are separated into two sections: the Treatment Blog and the Recovery Blog. Day Zero is when I received my stem cells back.
- Homeward Bound (Day +12)
- Treatment Complete (Day +11)
- Final leg of the procedure (Day +10)
- Healing fast! (Day +8)
- Neutropenia (Day +6)
- Jumped the gun (Day +3)
- Immune System Gone (Day +2)
- DAY ZERO - Got My Stem Cells Back!
- One million stem cells per kilo (Day -2)
- The “Mexican Method” (Day -4)
- Portal to the heart (Day -5)
- Waiting out mobilization, (Day -8)
- Done with first rounds of chemo (Day -9)
- A Rough Night (Day -10)
- Starting chemo now! (day -11)
- An Easy Day (day -12)
- First Major Snafu - The Flight Agent Chronicles
- We’re off
- Countdown to vacate
- Everything's Confirmed
- AHSCT and Progressive MS. Conflicting Studies (Year 6.4) - UPDATED
- Check-In (Year 5.2)
- No New Activity on MRIs (Year 3.6)
- Bloodwork Back To Normal (Year 3.3)
- Why Neurologists in the US Don't Recommend HSCT (Month +35.8)
- Better Pain Management (Month +33.6)
- Final Re-Vaccinations & The Medical Cannabis Primer (Month +32.9)
- "Sustained Decrease in Disability" (+30.6 months)
- No Progression Seen on MRI (Month +29.7)
- Cruising Along (Month +29)
- Nerve Decompression Surgery (Month +21.8)
- Looks Like It Worked (Month +17.2)
- Further Pain Improvements (Month +15)
- Significantly Lower Pain (Month +14.4)
- More Thoughts About MMJ, Meds & Pain (Month +13)
- +1 Years and Counting! (Month +12.6)
- Better & Better (Month +11.5)
- Major Pain Improvements. Finally. (Month +10.6)
- DIMS, SIMS and the Medicine Cabinet in the Brain (Month +9.6)
- Sliding Sideways ( Month +9.2)
- Pain, Pain, Go Away! (Month +8)
- Doctor: MS in Remission! (Month +6.75)
- Neuroplasticity (Month +6.1)
- Hopefully, My Last MRIs, Forever (Month +6)
- Chemobrain (Month +5.2)
- Kickin' and Screaming (Month +5)
- Month +3.7 Progress Report
- Fresh Foods Welcome! (Month +3.2)
- Thoughts About Pain (Month +3)
- Making Good Progress (Week +12)
- First Followup Rituximab Infusion scheduled (Week +9.5)
- Walking Towards Improvement (Day +54)
- Neutrophils Recovering Appropriately (Day +39)
- Less Pain Lately. Horray! (Day +25)
- The Highs & Lows of Recovery (Day +22)