First Major Snafu - The Flight Agent Chronicles
Apparently, booking your own airfare is reckless unless you’re a licensed flight agent. Who knew? According to United, the reason I missed two connections wasn’t TSA, weather, or even United itself — it was me, because I didn’t schedule a three-hour layover in San Francisco. The gate agent’s mantra? “You’re the one who booked the flight,” as if that excused her from lifting a finger. Maybe united.com should come with a skull-and-crossbones warning: “Customers, beware — don’t click ‘buy’ unless you’re a professional.”
Of course, I chose the very first itinerary their site recommended. No warnings. No “Danger: you’ll never make this connection.” Just a tidy “Buy Now.” So instead of arriving in Puebla the night before treatment, I staggered into Mexico City at 5:45 a.m (3:45am my time), then endured a three-hour car ride to barely make my 9 a.m. medical tests. For most people, that’s inconvenient. For me — running on pain meds and in desperate need of real sleep — it’s brutal.
And the help I got? Superagent suggested postponing my trip until the next day. Brilliant. She has no idea what's going on with me; six months of planning, $60k invested, and in dangerous MS backlash territory due to procedure-required deprivation of immunosuppressants. Also, don’t forget: take your mask off when addressing her royal highness. Who cares if the guy nearby is coughing up a lung, you're immunocompromised and only hours away from life-threatening chemotherapy. After 2.5 extra hours at SFO, I finally got it sorted (thanks, Mom, for keeping me from losing my sh@&;). Traveling is not for the light-hearted, and at this moment, I'm going for a Hail Mary.
UPDATE
We’re here. 21 hours of travel, one hour of sleep, and I’m already knee-deep in tests at Clínica Ruiz. They run it like summer camp: twelve patients split into three groups, each marching through procedures together. Bonding over blood draws — what could be better?
At least the traveling fiasco is over, and I'm in the hands of competent medical professionals now.
Important Timeframes
- My Stem Cell Transplant Date: June 5th, 2016
- Treatment duration: 4 weeks
- Typical onset of disability reversal: +9 months
- Typical complete recovery from procedure: +1 to +2 years
- Typical maximum reversal of disability: +2 years
Disclaimer
I am not a doctor. I am a scientist (engineer) who has had MS since March 2013.
The website blogs are separated into two sections: the Treatment Blog and the Recovery Blog. Day Zero is when I received my stem cells back.
- Homeward Bound (Day +12)
- Treatment Complete (Day +11)
- Final leg of the procedure (Day +10)
- Healing fast! (Day +8)
- Neutropenia (Day +6)
- Jumped the gun (Day +3)
- Immune System Gone (Day +2)
- DAY ZERO - Got My Stem Cells Back!
- One million stem cells per kilo (Day -2)
- The “Mexican Method” (Day -4)
- Portal to the heart (Day -5)
- Waiting out mobilization, (Day -8)
- Done with first rounds of chemo (Day -9)
- A Rough Night (Day -10)
- Starting chemo now! (day -11)
- An Easy Day (day -12)
- First Major Snafu - The Flight Agent Chronicles
- We’re off
- Countdown to vacate
- Everything's Confirmed
- AHSCT and Progressive MS. Conflicting Studies (Year 6.4) - UPDATED
- Check-In (Year 5.2)
- No New Activity on MRIs (Year 3.6)
- Bloodwork Back To Normal (Year 3.3)
- Why Neurologists in the US Don't Recommend HSCT (Month +35.8)
- Better Pain Management (Month +33.6)
- Final Re-Vaccinations & The Medical Cannabis Primer (Month +32.9)
- "Sustained Decrease in Disability" (+30.6 months)
- No Progression Seen on MRI (Month +29.7)
- Cruising Along (Month +29)
- Nerve Decompression Surgery (Month +21.8)
- Looks Like It Worked (Month +17.2)
- Further Pain Improvements (Month +15)
- Significantly Lower Pain (Month +14.4)
- More Thoughts About MMJ, Meds & Pain (Month +13)
- +1 Years and Counting! (Month +12.6)
- Better & Better (Month +11.5)
- Major Pain Improvements. Finally. (Month +10.6)
- DIMS, SIMS and the Medicine Cabinet in the Brain (Month +9.6)
- Sliding Sideways ( Month +9.2)
- Pain, Pain, Go Away! (Month +8)
- Doctor: MS in Remission! (Month +6.75)
- Neuroplasticity (Month +6.1)
- Hopefully, My Last MRIs, Forever (Month +6)
- Chemobrain (Month +5.2)
- Kickin' and Screaming (Month +5)
- Month +3.7 Progress Report
- Fresh Foods Welcome! (Month +3.2)
- Thoughts About Pain (Month +3)
- Making Good Progress (Week +12)
- First Followup Rituximab Infusion scheduled (Week +9.5)
- Walking Towards Improvement (Day +54)
- Neutrophils Recovering Appropriately (Day +39)
- Less Pain Lately. Horray! (Day +25)
- The Highs & Lows of Recovery (Day +22)