Mission Statement

This website documents one man's quest to cure his MS through determination, perseverance and a little luck.

Although harsh drugs and strict diet were successfully supressing my devestating MS relapses, disease progression was quickly deteriorating my ability to walk and slowly deteriorating my ability to think. The logical solution for me was to try HSCT, which is not FDA approved, so I left the country to do it. This website documents my research and journey to effect a cure.

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Recovery Blog

It's been a while since my last report. Oh, how life keeps us busy when we actually start to get our life back!

So let me just start by saying that I saw my MS neurologist last week for the first time in a full year. He performed a full EDSS evaluation on me. Then he went to jot the results down in his notes. Then he looked puzzled for a moment before he came back to re-measure my left leg (hip, knee, and ankle strength). "Wow," he said. "You're stronger." 

Well, that almost brought a tear to my eye, even though I knew I was stronger. It's just that the last time he made a comment about my left leg was right before I decided that I needed to do something drastic. He said, "well, your left leg is definitely getting weaker." That's what brought me here to HSCT.

As if that wasn't enough of a gold star, he continued. He read off the medication list that the nurse had jotted down. "That's all? No MS medications?" I said no. "That's all," he repeated. "What about Rituxan? Are you still on that?" I told him my last tiny dose was six months ago. "And for pain?" he asked. "These numbers are correct?"

"Looks like it worked," he said.

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It first happened around Month +8. I was eating lunch with my attorney and friend. I was in excruciating pain. I had been talking for a while, using my whole body (non-verbal communication) as we generally do when we're passionate about what we're saying. I couldn't tolerate it anymore. I had taken several doses of MMJ. I had to just freeze in place to try to manage my way out of this. 

Then suddenly, relief. Ahh. But this relief sustained for several full minutes. Then more. Then, I got in my car to drive back home. I was still pain-free. Driving & pain-free? That's a first (in several years). This was a discrete, sudden improvement.

It lasted almost three full days. What happened? It was a mystery. Was that my new normal? I needed to recalibrate my mind as to what I could do now, how I could live now. "This is simply unbelievable," I thought. But then I was also being very cautious. By the fourth day, things were back to normal. Damn.

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For the last two weeks, I've been using a different protocol while doing my daily hour of neurostimulation. I did three months of daily therapy, using tDCS, but I've since switched to "Random Noise, Alternating Current." This has provided me wiith significant relief!

You might recall that I had noticed relief during my first month of tDCS (transcranial direct current stimulation). Well, after three months, I had definitely hit a plateau somewhere along the way. I went back to my neuro-therapist, Dr. Tiff Thompson, and she suggested that I change the protocol to tACS. By the second day, I was already starting to feel the same type of improvements that I was seeing with tDCS in my early stages.

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Over the last few months, I've been able to cut my pain meds by half! (See "Decreasing my Anticonvulsant Medication" below)

To this, I attribute three things, not necessarily in order of effectiveness. The first is my continual improvement which began about four months after my HSCT procedure. That was about the time that things really started to improve. I gained back over ten pounds of the 40 pounds I had lost over the previous year. People started telling me that I looked much better.

The next thing is the Neurotherapy I began in early April. I've been doing Transcranial Direct Current Stimulation (tDCS) for a solid three months now. In other posts, you can read about all the work I've done on that front.

The third thing is MMJ (medical marijuana). A couple of weeks ago, I started to experiment further with a pattern that I had noticed. If I used the MMJ less as a reaction to a pain crises, and more as a pain prophylactic, I could nip it in the bud (no pun intended) before it got out of control. 

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Well, the great news is that I made it past my One Year HSCT Stem Cell Transplant Anniversary. That’s right; my immune system is now one year old!

Today, I’ll give a summary of the first year of my recovery.

The trip home from Puebla, Mexico was difficult and awkward. I kept my face mask on the whole way, except to eat some pre-packaged food (totally sterile), drink some bottled water, and to wipe my face a couple of times with a sani-wipe. One advantage of wearing a face mask is that nobody talks to you; albeit, everybody looks at you as if they’re trying not to look at you. Oh well, with a covered face, they don’t know who I am.

During the first couple months, I had friends shop for me and drop the food on my porch. I kept things ultra clean. I went out once every couple of weeks to do my shopping, and I wore my face mask and thin, latex gloves. The thought of touching all those things at the grocery store made me nauseous. I became an “anal” clean-freak for a few months, always carrying hand sanitizer in my pocket and refusing to shake hands or hug anyone. Most of that OCD-ness has subsided.

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